Medical Protocols and Alternative Programs

As the medical community continuously strives to enhance its understanding of CFS/ME/SEID, treatment strategies and protocols are subject to ongoing research, advancing techniques, and new discoveries. Here are a few notable practitioners and research groups closely associated with the development of CFS/ME/SEID protocols, whose contributions have significantly influenced the field:

  1. Dr. Sarah Myhill:

   – Dr. Myhill is a British doctor who has a particular interest in chronic fatigue and has developed protocols for managing CFS. Her approach includes addressing mitochondrial dysfunction, nutritional deficiencies, and managing energy production in the body.

https://www.drmyhill.co.uk/wiki/Overview_of_CFS/ME_protocol

Discover the range of supportive products highlighted in the protocol.

  1. Dr. Nancy Klimas:

   – Dr. Klimas is an immunologist and has been involved in research related to CFS. She has developed treatment protocols that include an immunological approach to understanding and managing the condition.

http://www.ME-CFSKnowledgeCenter.com

Discover the range of supportive products highlighted in the protocol.

  1. Dr. Charles Shepherd:

   – Dr. Shepherd is a medical advisor to the ME Association in the United Kingdom. He has been involved in advocating for individuals with ME/CFS and has provided guidance on management strategies.

https://meassociation.org.uk/

Discover the range of supportive products highlighted in the protocol.

  1. Dr. Lucinda Bateman:

   – Dr. Bateman is a clinician with expertise in ME/CFS. She founded the Bateman Horne Center, a clinic specializing in the treatment and research of ME/CFS and fibromyalgia. The center emphasizes a comprehensive, individualized approach.

https://batemanhornecenter.org/wp-content/uploads/2020/05/MECFS_FM_Treatment_Advice.pdf

Discover the range of supportive products highlighted in the protocol.

  1. Dr. Jacob Teitelbaum is a physician and researcher who has focused on chronic fatigue syndrome (CFS) and fibromyalgia. He has developed a comprehensive approach to addressing these conditions, which he outlines in his book “From Fatigued to Fantastic!” Dr. Teitelbaum’s S.H.I.N.E. Protocol goes for Sleep, Hormonal support, Infections, Nutritional support and Exercise.

https://endfatigue.com/shine-protocol-for-chronic-fatigue-syndrome-and-fibromyalgia/

Discover the range of supportive products highlighted in the protocol.

  1. Dr. Jay Goldstein is a physician who has dedicated much of his career to studying and treating patients with chronic fatigue syndrome (CFS) and fibromyalgia. His approach to the treatment of these conditions is known for its emphasis on neuroendocrine dysregulation and the use of medications to address various symptoms. Keep in mind that Dr. Goldstein’s protocol may not be universally accepted, and individual responses to treatment can vary.

http://www.cfstreatmentguide.com/dr-jay-goldstein-a-z-treatments.html

Discover the range of supportive products highlighted in the protocol.

  1. Dr Paul Cheney was a cardiologist who had developed a controversial treatment protocol that involves the use of several medications and supplements to help combat the infection, including antibiotics, antivirals, and antioxidants. 

https://www.healthrising.org/blog/2014/08/25/cheney-chronicles-protocol-chronic-fatigue-syndrome/

https://www.imet.ie/imet_documents/Paul_Cheney_NMH.doc

Discover the range of supportive products highlighted in the protocol.

  1. Dr Charles Lapp

Dr Charles Lapp is Founder and Director Emeritus of Hunter-Hopkins Center.

HHC is a nationally recognized center. It specializes in Chronic Fatigue Syndrome (CFS) and Fibromyalgia (FM) and have developed a program of management that includes traditional and complimentary therapies, a behavioral component, and disability support.

https://drlapp.com/

Discover the range of supportive products highlighted in the protocol.

After thoroughly reviewing numerous testimonials, it is evident that opinions regarding the effectiveness of brain retraining programs are divided. While some patients reported significant improvements, others claimed to have experienced no discernible changes. Nevertheless, we firmly believe that incorporating brain retraining into the recovery process is crucial, as the central nervous system is involved in perpetuating the intricate cycle of this condition

The scientific evidence and logical reasoning supporting this approach are undeniable, and it is important that we include addressing the brain’s response in our recovery process.

 

Free Resources

 Numerous valuable resources can be found online at no cost, including those provided by the creators of the programs. I included links to free videos on programs list.

For some patients it was sufficient to understand and apply brain retraining themselves with great result.

 

  • The ME/CFS and Fibromyalgia Self-Help Program is a non-profit organization created by Bruce Campbell, PhD offering a suite of low-cost and free online self-help courses and classes, plus other resources for people affected by ME/CFS and fibromyalgia. Founded in 1998, it has conducted hundreds of self-help groups teaching thousands of people how to manage their illness. Dr. Charles Lapp is one of the contributors.

They are free, or $20-$30 for some classes.

 

Website: https://cfsselfhelp.org/online-courses

 

 

Brain Retraining Programs:

 

If you are interested in exploring personally guided programs, here are some options available for you to consider. Please note that the prices provided are approximate and subject to change at the discretion of the owner; therefore, they should be considered as indicative.

 

1. Gupta Program:
The Gupta Program, developed by Ashok Gupta, focuses on retraining the brain’s response to stress and fatigue. It incorporates elements of neuroplasticity, meditation, and cognitive restructuring to help individuals with CFS regain control over their symptoms. The program utilizes online resources, including video modules, to guide participants through the process.

Website: https://www.guptaprogram.com/

Cost is around $400 a year.

Free videos: https://www.youtube.com/@GuptaProgram

 

2.Dynamic Neural Retraining System (DNRS):
DNRS, created by Annie Hopper, is designed to address limbic system dysfunction, which is believed to play a role in chronic conditions like CFS. The program employs a combination of cognitive and neural exercises, aiming to rewire the brain’s response to perceived threats. Participants can access the program through workshops, online modules, and coaching sessions.

Website: https://retrainingthebrain.com/

Price is around $360 a year.

Youtube free: https://www.youtube.com/@Dnrsystem

 

3. Mickel Therapy:
Mickel Therapy, developed by Dr. David Mickel, focuses on identifying and addressing the root causes of CFS, which are believed to be emotional in nature. The program involves a combination of talking therapy and specific exercises to help individuals manage and alleviate their symptoms.

Website: https://mickeltherapy.com/

Price $100-$130 per session, minimum 8 sessions required

 

4. Dynamic Healing:
Dynamic Healing, founded by Dr. Howard Schubiner, combines elements of mindfulness, emotional awareness, and cognitive-behavioral techniques to address chronic pain and fatigue associated with conditions like CFS. The program offers online resources, including courses and guided sessions.

Website: https://www.thedynamichealing.com/

https://www.freedomfromchronicpain.com/

Prices around $300 to $500

 

5. Reverse Therapy:
Developed by Dr. John Eaton, Reverse Therapy focuses on the mind-body connection and aims to reverse the patterns of stress and fatigue. The program involves identifying and changing habitual thought patterns and behaviors that contribute to CFS symptoms. Reverse Therapy offers both individual sessions and workshops.

The book: Reverse Therapy for Chronic Fatigue, Fibromyalgia and Related Disorders. By Dr John Eaton

Website: https://www.reverse-therapy.com/

https://www.youtube.com/playlist?list=PLE6EFBB0042F6925F

 

6. ANS Rewire:
ANS Rewire, founded by Dan Neuffer, focuses on retraining the autonomic nervous system (ANS) to restore balance in the body. The program incorporates education on the nervous system, lifestyle modifications, and targeted exercises to address symptoms associated with conditions like CFS.

Website: https://ansrewire.com/

$350, free lessons on website

Youtube free videos: https://www.youtube.com/@CFSUnravelled1

 

7. Curable App:
Curable is a mobile app that combines cognitive-behavioral therapy (CBT), mindfulness, and education to address chronic pain and fatigue. While not exclusive to CFS, the app provides a comprehensive approach to managing symptoms and improving overall well-being.

Website: https://www.curablehealth.com/

$12 a month, there is free trial


8. CFS Health
:
CFS Health, founded by Toby Morrison, focuses on a holistic approach to CFS management, addressing physical, mental, and emotional aspects of the condition. The program includes personalized coaching, educational resources, and practical strategies for daily living.

Website: https://www.cfshealth.com/

Youtube free videos: https://www.youtube.com/@CFSHealth

The cost is $639 AUD per month or $149 AUD per week for a minimum of 6 months.

9. CFS Recovery:
CFS Recovery (founder Miguel Bautista) offers a program called Recovery Jumpstart to help those with ME/Chronic Fatigue Syndrome, Panic Disorder, Long Covid, or a Hypersensitive Nervous System. The program includes video modules, personalized data-driven metrics, and ongoing coaching.

Website: https://www.cfsrecovery.co/

Price: $6500 USD for a year (and 297USD per month thereafter)

Youtube free videos: https://www.youtube.com/@cfsrecovery

10. The Re-origin Program, founded by Ben Ahrens is a self-directed, science-based, neuroplasticity-based training program that helps people with chronic conditions such as Anxiety, Depression, Pain, Chemical or Food Sensitivity, and Fatigue live happier and healthier lives.

Website: https://www.re-origin.com//

$300-$900 a year

Youtube free videos: https://www.youtube.com/@re_origin

11. The Lightning Process
The controversial Lightning Process is a holistic program that draws on a range of mind-body techniques, such as NLP, CBT, and meditation. Developed by Phil Parker, this program aims to reduce symptoms and create lasting change by retraining the brain to respond differently to stress and negative thought patterns. The program consists of a three-day seminar followed by ongoing online support resources.

Website:https://lightningprocess.com/

$1500-$2500 plus follow-up

12. Brandy Gillmore
Led by Brandy Gillmore, a renowned healer and expert in mind-body medicine, the program integrates principles from neuroscience, energy healing, and psychology to address physical, emotional, and spiritual well-being.

Through a combination of guided visualization, positive affirmations, energy work, and mindset training, participants learn to harness the power of their thoughts and beliefs to facilitate healing at the cellular level.
There is an option of free training and payed plans. You can also volonteer for free live session on podcast. 

Website: https://brandygillmore.com/

Free Self-Healing Masterclass 

$70-$400 for different courses